Archives for July 2011

REMINDER: Join Us at the Brave Will Golf Tournament

There is about one week left to reserve your spot at the Brave Will Golf Tournament on Saturday, August 6 at McGregor Links Country Club in Wilton, NY. We are asking that all registrations be submitted by Monday, July 25th. The event is being held as a four-person scramble so all golfers, whether you are a regular golfer, a player who spends as much time in the woods as you do on the green, or a once-a-year golf outing enthusiast, this tournament is for you.

The cost to register is $100 and includes your greens fees, cart, lunch, and dinner buffet. For an additional $50, any foursome can also purchase a tee sponsorship, a perfect opportunity for your team to celebrate Will Power on that day. Team prizes will also be awarded and there will be opportunities to win other prizes for closest to the pin, longest drive, and hole-in-one contests.

You can register online by visiting: You can also register through the mail using the form linked below.

Don’t hesitate! Reserve your spot today for the tournament and spend a great day at the course supporting an even greater cause. We can’t wait to see you all on August 6th.

Happy Birthday Will and a Wonderful Day at Albany Med

The Brave Will Foundation spent the afternoon on Wednesday holding an ice cream social at Albany Medical Center. Nine gallons of ice cream, chocolate syrup, whipped cream, and assorted toppings (thank you to Stewart’s for the donation!) were dished by members of the Brave Will Foundation’s Board of Directors for the doctors, nurses, staff, and most importantly children and their families who are currently in the children’s hospital. It was an opportunity for us to give back something directly to the children and families that we think of every time we hold a fundraiser or solicit a donation. These are the people whose lives will forever be altered by their stay at the hospital, just as our life was forever changed with our journey with Will. We’re so happy that we could give these parents and children an escape, if even for a few minutes, from the challenges they face each and every day. As one father, whose child was in ICU said to us, “I didn’t realize how badly I needed a break until I sat down and had some ice cream.” That is often the case for parents and children who have lengthy stays at the hospital. You simply get lost on the moments of the day, losing track of the basics of life: nourishment, sleep, health. It’s only when you step away from it for a brief time that you realize just how far you are from being “normal” and how important it is to introduce normalcy into your daily life again. We hope we were able to bring a little bit of normal into the day for those children, parents, brothers and sisters.

The reason we chose today to hold this event was to celebrate Will’s birthday on July 14th. Will would be turning three on Thursday. As we’ve said many times, being at Albany Med is like being home with Will. Most of our memories of Will’s seven months with us were spent at that hospital. To see the doctors and nurses who shared Will’s every day with us makes him feel so alive and so close to us, more so than any other place we know. The walls of the hospital were his home and the people who took such good care of his were his extended family. Being able to share his birthday with them was such a special occasion for us.

While we were there, we decided to give the best present we could think of for his birthday. In his honor, in his legacy, and in his memory, the Brave Will Foundation donated $25,000 to the Journeys pediatric palliative care program at the Children’s Hospital. The donation will help support the special people who help children battling life-threatening illnesses and their families. These doctors, nurses, social workers, and chaplains work tirelessly to give the highest quality of life to children who are facing tremendous odds against terrible illnesses. We are so thankful for the work that they do and the impact they are already making. If you haven’t had a chance to watch, we encourage you to learn more about palliative care by viewing our video from the gala held in April. When you watch this video and listen to these people talk about the Journeys program, you’ll understand why we’ve made it such a focus for our foundation.